Bella's Gift: How One Little Girl Transformed Our Family and Inspired a Nation

Rick and Karen Santorum’s inspiring tale of lifestyles with Bella, their special-needs youngest child 

Four days after Rick and Karen Santorum welcomed their 8th child into the realm they got the devastating information that their little lady, Bella, used to be going to die. the total tale of existence with Bella hasn't ever been informed beforehand. This inspiring kin memoir explores what it skill to embody and rejoice the lifetime of everyone, and locate wish, even in the course of painful challenges.

Bella’s Gift is the tale of ways the full family members got here jointly to like and deal with Bella and the way God bolstered them throughout the storms and blessed their family members with grace, peace, and joy. 

Searchingly sincere, religion stuffed, and unusually cheerful, Bella’s present is a loving, lived-out testimony to the fact that all people counts, even “the least of these.”

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Blinman couldn't were nicer, and he mentioned Bella by way of identify. This seems like the sort of small element, yet on this planet of individuals with disabilities, a reputation offers wish. He stated her existence, her individual, and gave her price via announcing her identify. Dr. Blinman desired to find out about Bella and her wishes, anything the opposite medical professionals had by no means even requested. on the finish of a protracted and compassionate dialog, Dr. Blinman stated he had a number of Trisomy 18 sufferers and believed Bella could do rather well. and he or she did. Bella had the surgical procedure at CHOP while she used to be 3 months outdated, and there has been no challenge getting her on or off the ventilator, no an infection, and no challenge together with her feedings. Dr. Blinman did the surgical procedure laparoscopically, and in a single method Bella had the feeding button in position. She was once domestic in days. Bella is sort of seven years outdated now, and she’s by no means had a subject along with her feeding button. until eventually Bella used to be 5, we went as much as CHOP each 3 months after which each six months because. Bella sees all her physicians and her nutritionist, Robin cook dinner, whose pleased demeanor continually made our visits together with her so friendly. She may quick calculate Bella’s dietary wishes, giving us assistance with each aspect of Bella’s feedings, reminiscent of supplements, minerals, fiber, energy, and fluids. Dr. Blinman and Robin interact with seventy nine 00-01_BellasGift. indd seventy nine 11/14/14 10:37 AM B E L L A' S G I F T us on Bella’s dietary wishes. Dr. Blinman’s disarming humorousness and Robin’s vivacity nonetheless illuminate the health facility room. either Robin and Dr. Blinman have performed pivotal roles in our trip with Bella, and we're so thankful to understand them. At CHOP, the medical professionals approached Bella hopefully, with compassion and recognize. whereas different medical professionals acknowledged Bella could by no means speak or stroll, physicians at CHOP stated, “Bella communicates good along with her eyes and facial expressions. She has stable muscle tone and, with the correct treatment, are able to use a walker. ” whereas neighborhood medical professionals instructed us Bella’s face was once abnormally small and might provide her respiring difficulties, medical professionals at CHOP acknowledged Bella used to be appealing and her candy face was once petite. They advised us they can aid her breathe greater. whereas different medical professionals commented that her mouth was once too small, a physician in CHOP’s PICU informed us that she enjoyed Bella’s little mouth and could locate an oxygen masks that healthy simply completely. not just did they see her good looks, yet additionally they famous her capability and desired to aid her achieve it. whereas different medical professionals have been announcing there has been no desire, CHOP physicians have been announcing to only provide her an opportunity. nearly seven years have handed on account that Bella’s start. approximately seven years due to the fact we got the crushing prognosis of Trisomy 18. almost seven years given that these phrases “lethal prognosis” and “incompatible with lifestyles” have been coldly spoken by way of the physician and burned into our hearts. was once it a slip of the tongue? perhaps the surgeon simply didn’t imagine ahead of he spoke. probably he simply didn’t notice the massive effect his phrases may have. After virtually seven years, they nonetheless disturb me and echo in my brain as though they'd simply been spoken.

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